Siblings Australia research

FINAL Siblings ILC Mapping Project Report 2018

Supported by the NDIS this project explored the sibling support available to siblings of children and adults with disability.

Final Report SDF 2017

Supported by the Sector Development Fund of the NDIS this project explored the needs of adult siblings and developed both online and face to face support opportunities.

Sibworks evaluation 2015-2016

The following two articles came from the evaluation of Sibworks done by Adelaide University’s psychology department. If you would like a hard copy email

Roberts, RM, Ejova, A, Giallo, R, Strohm, K, Lillie, M & Fuss, B. (2015). A controlled trial of the SibworkS group program for siblings of children with special needs. Research in Developmental Disabilities. 43-44, 21-31.

Rachel M. Roberts, Anastasia Ejova, Rebecca Giallo, Kate Strohm & Meredith E. Lillie (2016): Support group programme for siblings of children with special needs: predictors of improved emotional and behavioural functioning, Disability and Rehabilitation, DOI: 10.3109/09638288.2015.1116621

Phone in summary 2013
Siblings Australia conducted a phone-in on January 12th to gauge families’ thoughts on the availability of sibling support and what would help.

Report from surveys re aggression 2012

For some time Siblings Australia has been concerned about the issue of siblings being physically hurt by a brother or sister with disability. We developed surveys for parents, siblings and service providers and whilst we understand this is a sensitive topic, we also believe that it is worthy of consideration. We hope that this small research project will lead to more extensive research through which we can gain more insight into the support needs of families.

Scoping Project – Report 2009
This research investigated what sibling programs were operating around Australia, what models were used and what workforce development was needed. Over 100 providers of sibling programs responded and reinforced the idea that there needed to be more collaboration, more resources and skill development as well as more funding for these programs.

Final adult sibling project report  2009
This research, supported by Julia Farr Purple Orange explored the concerns and needs of adult siblings of people with disability.

ARACY collaboration report     2008
Siblings Australia had long been concerned about the lack of collaboration and co-ordination around research into sibling issues and models of support. After contacting researchers around the country we established a group of researchers and together we were successful in gaining a small encouragment grant to facilitate some collaboration between researchers and service providers.

AeJAMH editorial 2008 (an article about the work of Siblings Australia)

Evaluation of SibworkS 2007 (this was a very small sample and so the results were not very conclusive). More recently, we have evaluated the program and two papers have resulted from this – see above. It is crucial that sibling programs undergo evaluation to ensure best practice.

Youth Studies 2001 (an article about the work of the pilot Sibling Project, which then led to the development of Siblings Australia)